Thursday, December 10, 2009

Trying to get a cute picture... not so easy

I have managed with OTHER people's kids... but not my own - Ha!



Zac was covered in spiderman tattoos and Selah Grace did not understand the utter cuteness of a baby beret.



Oh - and it was absolutely FREEZING outside!



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They both humored me for about 2 minutes before all hope was lost. :)

Texas Tech game

We had such a great time at the Tech game! The weather was PERFECT. And we won!!





Zac started to get kind of bored around the 3rd quarter. So we let Dad watch the game and we chased each other down the ramp from the top to the bottom. Twice. We bought some grapes from the fruit stand. Finally, we ended up finding a play space for kids.





Selah Grace was a favorite with her little Tech jacket (goodwill find!!!!) and big big bow.





Still very fun, and Zac LOVED it, but next season we are wanting to get down to Lubbock to tailgate with no kiddos. ;)





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And this picture is TOO STINKIN CUTE not to include!! A friend behind us took it...

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First snow!

Zac came tearing into our room that morning - SNOW!!! SNOW!!!!



We let Selah Grace sleep in and went outside to have some snow fun. :)



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In Texas, snow lasts for a very short time. Of course this meant that there was NO snow by the time SG was ready to head outside. Maybe next time!

Wednesday, December 9, 2009

liar liar pants on fire

No pics!
1. I underestimated the time it would take to compile CDs for 2 photo sessions I had last weekend.
2. Selah Grace is sick.
3. Zac sees me tending to SG, and neeeeeeeeds me for every little thing.


Maybe tonight. We'll see!


Still nervous about the appt tomorrow, but definitely feeling everyone's prayers. THANK YOU!!

Monday, December 7, 2009

4 more days...

... until the appointment.

Thursday at 9am.

We've had a rough couple of days as all of our emotions from 2 months ago are flooding back.

It's like we just kind of forgot about it for a while. But now, I'm a mess one minute. Then Brian is a mess. Sometimes we are both a mess. We just want it to be over with already!


We had a really fun thing happen this weekend, though. Friday night we had a party to go to, with no kids. We didn't know what to do with ourselves. :) I had a new outfit on - and it wasn't maternity -- ha! Then, at the party, we won a raffle for Dallas Stars tickets - Row ZERO! We're very excited!


On Saturday, I had a photo session and then we had another party to go to. We brought SG and she slept in her carrier the whole time.

This one was fun until the end. We were about to head home and someone asked us, "Oh, does your daughter still have that thing? You know, that thing?"

And I looked at Brian... and he politely asks, "What thing?"

And she says, "You know, that thing that was wrong with her?"


It was horrible. Typing it out doesn't come close to describing how awful it was.


So, there was a pause, and I softly said, "Well, she's going to have that her whole life."

:(

We were very hurt.

This is the second time we have been really really really hurt. I'll never forget the time there were several people who met newborn SG for the very first time and immediately asked to see her rash. No "cute baby" comments. Just people peering into her infant carrier like she was a freak show while my eyes filled with tears. That image is burned into my memory. I sobbed the whole way home.

We don't expect people to say the perfect thing all the time. In fact there is no perfect thing to say! We don't mind thoughtful questions of friends and family who truly care about our baby girl. But it's hard to get comments/questions from people who are just nosy and you know they don't care.


Although maybe it's why I love to make her big bows. Gives people something else to talk about.


Sorry... I went off on a bit of a tangent.


Please continue to pray for us regarding Thursday. The doctor is a bit hard around the edges, and doesn't necessarily break things very gently. But, she's a good doctor and that's what we want. We are very sensitive this week and nervous and all those mad feelings come back and the unfair feelings and the frustration and all that.



We might not want to talk about it afterwards. I don't know. But I'll for sure post on the blog when we're ready.



Anyways. *SIGH*

More fun things tomorrow. A big picture post is coming! With SANTA PICTURES!! And Texas Tech game pictures!! And SNOW pictures!! And a photo shoot with my babies that went terribly wrong...heehee! :)

Right now, I have one child in my lap (yes, just typed all that one handed) and one who is "starving" and "bored" and driving me bonkers because he cannot STAND the fact that there are presents under the tree and he can't open them. ("How would you feel if you were me, Mom?!)

We might head to the mall until bedtime.

And if that's the case, I don't know how I'm going to NOT buy the gold ballet slippers for Selah Grace that Brian keeps saying no to. Don't even get me started on the red uggs that would be ADORABLE on her! Anyone want to donate to the Selah Grace shoe fund? :)

Thursday, December 3, 2009

from zachariah

Mom. You know when you bite into something and it give you goosebumps? That's what happened with my oatmeal! BUT - my halloween candy does not do that to me. So, I should have that for breakfast instead.

Tuesday, December 1, 2009

Updates on Selah Grace

Our little Selah Grace is doing great! She is 10 weeks now. Can't believe it!

Our nicknames for her:
Selah Gracie
Selah Baby
Silly Selah
My sweet-little-baby-princess-darling-cutie-baby-girl (okay, that's just mine)


Selah Grace is such a big girl now!

She sleeps in her room (shares with Zac). She goes to bed around 7pm and sleeps until about 8am or so. She still eats every 3 hours, but she goes right back to sleep, so that's nice. And she wakes up so happy. It's so stinkin cute! (both our kids are such morning people!)

She sleeps in a scary crazy way. For some reason, she likes to smoosh her face while she sleeps. If we are holding her, she nuzzles her face into our armpits or the crease of our elbow. She sleeps face down in bed and it freaks me out. What a turkey. (weirdly, Zac did the exact same thing!)

She is a MOVER. Girlfriend can turn her whole body around in bed. She can scoot all around. She is making me rethink me idea of no crib bumper. I feel so bad for her when she scoots up to the end of the crib and smacks her head. And, bless her heart, she continues to try and scoot forward and bumps her head over and over. So funny/sad to see when I'm walking in to get her.

She also goes to the church nursery on Sundays (and during Mops). We know one of the nursery workers in her sunday room. I taught vbs with her this summer. It's very easy to hand over my baby to someone who is dying to hold her! :)

On a funny note, we now consider church our date day. LOL! We drop off both kids, then we giggle and hold hands and act all goofy in love. Because no one is tugging on us. No one is spitting up on us. No one needs food. And because we can. :)




I haven't really talked about Selah's medical stuff in a while.

It's just kind of always there.... lingering in the background... but we don't actually talk about it much anymore.

We brought her to our Sunday School class and everyone circled around her to pray for her. It was extremely emotional. And we have so much support there - so many prayers.

We see her rash doing what the drs said it would do. It's a tiny bit darker - more brown than red. It swirls a little bit up her legs. You can feel it... kind of feels like exzema. It sometimes looks like exzema, too. But it's not exzema.

She has a tiny spot of it between her eyebrows. We are probably the only ones that see that one.

Most of the time, we just are enjoying her as our sweet baby girl. We haven't had a dr appt or anything to remind us.

But there are times when it is an unspoken member of our conversations and thoughts. I watched the Texas Tech cheerleaders last Saturday at the game. I thought how fun it will be when Selah Grace is old enough to participate in a sport that I loved so much. But... will she be able to? Will her condition impact that? We don't know.

Is it so stupid that I cry about the dumb cheerleader thing?


My mind wanders when I see people of short stature. I want to talk to them. Ask them if they were average sized babies. Ask them about their life. Ask them if they've heard of Selah Grace's condition. And then I realize I'm staring.

And I wonder... will people stare at my baby girl?


My parents volunteer regularly at a place for children with disabilities. Will Selah Grace be one of those children? Did the Lord put my parents there because of their grandaughter?


I have some cute shorts for her to wear... but I never put her in them. I find myself thinking about her rash when I buy her clothes... long dresses...lots of tights and baby legwarmers...


I brought her in for her 2 month appointment at the pediatrician. She is 12 lbs, 7 oz! She took shots like a superstar. Dr said she looks great. :)

When he was walking out, I quietly asked him if her legs were the right length. Are they shorter than average? He was kind. I think he saw the paranoia in my eyes. He said she looked normal to him. I just kind of laughed it off... but I was so relieved.


We finally got into the geneticist. We have an appointment on December 10 at 9am. It puts knots in my stomach. I don't know why. I'm glad that they were the ones who called us, because I think I would have put off this appt for as long as I could.

ugh... typing that made me really start to cry.

I think I'm nervous about it. And scared.

They wanted to make sure we brought the CD of her bone scans. They told us at her birth that she was showing possible mild scoliosis and she had a full skeletal bone scan.

Well crumbs. I had forgotten about the scoliosis.

Please start praying regarding this appointment.
* Wisdom for the doctors involved in her case
* Strength for us to handle the outcome
* Patience in case we have to wait longer for any more information
* Peace about whatever we hear
* Faithfulness to Him, regardless of the situation
* Any opportunities to give Him glory to those who don't know Him
* That she wouldn't have any pain during exams/tests

We don't really know what to expect out of this appointment. But we've been told by other parents to emotionally prepare for the office. The children are all there for a reason. And we've heard that sometimes it's scary. I am afraid I'm going to cry. I want to be strong.

We also ask that, if you feel led, that you pray for healing our little girl. We aren't delusional about medical conditions, but we also know that we serve an AWESOME God - and He is in the miracle business.

It's hard to plead so desperately, but also tell myself that I need to be okay with whatever His will is for her life. So hard.

A million thanks for your thoughts and prayers for our little Selah Grace. God bless you.